So far today we haven't had the same big moves that we've seen in the last 48 hours, but we also haven't seen anything to make us terribly worried. Here's where we are today:
Clara's diuresis has gone so well over the last couple of days that her blood volume was actually getting a little low, which causes problems with the ECMO pump. She also has a big gas bubble in her stomach that has been causing her some discomfort, so she's been pretty squirmy, which can also cause pump issues.
So, for now, they've given her some blood products to up the volume, and they're discontinuing the Lasix so that her volume can stabilize and the pump issues can settle down. They are also trying to suction out her stomach gas a little to relieve some of that pressure. We hope to be able to start diuresing her again soon, but the doctors tell us that Clara will let us know when she is ready.
Her chest x-ray from this morning still looks about like it did yesterday, and they haven't done another heart ultrasound since last night, which looked maybe a smidge better than the one from yesterday morning. However, now that diuresis is kind of on pause, we may see more fluid build up around Clara's lungs and some of her capacity and inflation decrease again. We won't know until we see how she handles it.
Dr. Pranikoff, one of the three pediatric surgeons, just stepped in and let us know that he feels OK about where she is right now, and didn't seem to be too worried that today is stable, instead of improving by leaps and bounds.
So here's what to pray for today:
-that her pump flow issues will resolve quickly and we can stop freaking out when we hear it beep and shut off for a moment.
-that she will be able tostart back on Lasix soon, so that she can continue to get rid of fluid and open up her lungs more.
-that any fluid that builds up while she is off lasix would occur somewhere other than her lungs.
-that her pulmonary hypertension would continue to improve, or at least not regress; we want to hold on to the progress we've made since Wednesday.
Keep praying, friends. Continue the chorus of prayers to God's ears to perform a miracle in Clara's life.
Talitha koum! (Little girl, get up!)