|Clara with open eyes|
I'll be honest - I'm growing a little anxious about weaning off ECMO. I know that we have to be patient and wait for Clara to be ready and trust in God's timing. I don't want to rush things. But the longer we're on this support system, the bigger the chances are for other complications, problems and setbacks. She's done such a great job of inflating her lungs and showing us she can breathe and even reducing the pulmonary hypertension. I'm just very eager for her to also get rid of this fluid and be able to sustain herself without the pump. Please continue to be in prayer - especially for this specific need. Hopefully this afternoon and evening will be successful in diuresis and when we cap off tomorrow Clara will show us what she's got!
A very bright spot in today was a surprise visit from the Easter Bunny (aka: Nurse Holli). She brought Clara her first Easter basket today, filled with lots of special goodies.
|Clara's first Easter basket|
|A pretty purple hairbow|
|Little Bunny needed a hairbow too....|
We had lots of fun "decorating" her crib, hanging some Easter eggs, and giving her some of her new presents, like her beautiful butterfly wrist rattle.
Here she is showing off her new manicure (I filed her nails today, too). Please forgive her peeling skin... that's what happens when you fill up with fluid and puff up like a marshmallow. I still find these fingers just incredible.
|Clara's Easter Egg|
|Sweet Easter hand|
Since I didn't sleep much last night and things were pretty low-key this afternoon, I came home earlier than usual to try to sneak in a nap. Robert is back at the hospital now, so if there's another update later tonight we'll post it to Twitter. In the meantime, please pray for successful, stable and rapid diuresis and a longer (maybe even final?!) cap off tomorrow. We're so proud of this sweet girl and are ready to watch her jump this next hurdle. Go, Clara, go!