So that's the medical stuff, but I know what you're really wondering is how is she doing, how are we doing, what did we do today. Well, the answers are: good, good, and we sang, read, chatted and held hands. It was a wonderful Saturday of time with family and time with Clara. Big Daddy went and visited her first thing this morning and then Robert, Mama K, Sweet Mama and I were all there this afternoon. We spent quite awhile singing to her from the hymnbook and eliciting quite an audience of onlookers from the rest of the unit. Clara is blessed to have two grandmothers with beautiful voices. We've got to get these lungs better so that she can join them in song. I'll post some videos of us singing together. We also read a few stories and just spent time touching her, talking to her and telling her about how much we love her and want for her to get well. She seems to really respond to our voices, touch and other stimulation and it makes us really feel like our time spent with her is not just for our benefit, but for hers as well. Daddy Bob just got back in town from GA and I think he's headed over there tonight to give her his love too.
Thanks to the many of you who have expressed your concern about me and how I'm doing post-delivery. I have to say I've been very blessed to have an easy recovery and am feeling great. I think my body hated every minute of pregnancy so much that it's just instantly relieved to have Clara OUT! It's been so great to not be nauseous for the first time in nine months, to actually have an appetite, to be able to bend over and move, to not be swollen, etc. etc. etc. I'm doing my best to not push it too hard by limiting my hours at the hospital (as difficult as it is to leave her each day, the nurses are taking good care of her and 4-5 hours there is enough), eating well and drinking lots (thanks in large part to the wonderful help of my fabulous mother-in-law this week), and sleeping when I can between pumping. I'm tired at night, but overall I am feeling good. So, thanks for all your love!
Things to continue praying for: fluid reduction over the next few days, a good response to decreased ventilation/oxygen, a strong heart with no more arrhythmia, reduced pulmonary hypertension, successful weaning off of ECMO in the next few weeks, her left lung to grow grow grow, her doctors, nurses and other staff caring for her. And keep praising God for His faithfulness to us and thanking him for loving Clara even more than we do!
Here are some photos from today.... even though she's still puffy, she does look so much better than yesterday. When I got ready to leave today and leaned over to kiss her on her forehead, she fluttered her eyes at me and squeezed my finger tightly. I'm pretty sure she was saying, "I love you, Mama." I love you, too, Baby Girl. So much.
|Sweet Clara, two days after surgery|
|Both grandmothers serenading by her bedside|
|Singing in beautiful harmony|
|Our girl has quite a grip. Hang on tight, Clara. We're gonna get you better.|
|These lyrics are especially appropriate for Clara. I think we'll sing it to her every day.|
We were reminded by a staff member today that having a baby on ECMO means we have one of the sickest patients in the whole hospital. We want to continue to communicate to you how serious this is and how much prayer we still need while also conveying that we are relying on faith and hope and have been filled with God's peace. It's a tough balance. So, keep praying. And we'll keep believing.