Up until that point, it had been a pretty low-key day for Clara. We couldn't really move ahead on much else until this procedure was taken care of, so she mostly just got to rest and build more strength. She was awake and alert a lot, but also snuck in a few naps here and there. We talked and read and sang and she continued to keep her watch over that sneaky trio of monkey, hippo and lion. Her oxygen saturations stayed high all day long and she's tolerating movement and stimulation beautifully. So, we may even begin to think about starting to wean her sedations some tomorrow. The last drip IV she has (besides sedation medications of morphine and versed) is milrinone. It's a very low dose of 0.25, but we're weaning it to 0.12 tonight and then it will come all the way off tomorrow. We'll have another echocardiogram in 3-5 days once it's all completely out of her system to make sure she's doing okay without it. We were going to resume feeds today because her chylothorax looks like it has resolved, but it had to be put off until tomorrow because of the broviac procedure. So, we will start that up tomorrow morning (on the Enfaport formula I mentioned yesterday) and hope that there are no signs of the chylothorax returning. If it stays away, I think extubation could be in our near future!
There's the short story on today. A hot bath is calling my name after an eleven hour hospital day, so I'll just wrap up with a few photos of the amazing shrinking baby.
|She's been sucking hard on that ET tube. I think she's ready to extubate!|
|sweet red polka dots|
|toesies peeking out from her blankets|
|"Did you say you're taking me to surgery again??"|
|And the "We Love Brenner Children's Hospital Staff Spotlight of the Day is............" MELISSA! She's been a great nurse to Clara and took excellent care of her before and after her surgical procedure today. Thank you, Melissa!|
Prayers for today:
- We've got less than a kg left to lose, but still need to finish diuresis so we can be done with the Lasix and be back to "dry weight" only! Her chest x-ray was a little wet again today, so we need the last of the fluid to scram!
- Successful re-starts of feeds and no more chylothorax
- Weaning of milrinone tomorrow and no worsening PPHN once it's gone
- The beginning of weaning off of sedation... we've got a long way to go until those are all the way off
- And on the horizon.... extubation and oral feeds
We are continually amazed, awed and incredibly thankful for the blessings in our lives. We are so thankful for this beautiful girl, the staff at Brenner and the care they're giving her, the support and love we've been showered with from friends and strangers across the world, and most of all for God's grace and love and His active presence and involvement in our lives. May He be glorified!