Today was what the nurses described as a "boring" day. And it's just what we love and want many, many more of. Clara stayed very stable, very peaceful and very calm today. Her numbers were all relatively okay. The nurse and respiratory therapist check her constantly and are always tweaking little things here and there like more platelets or less fluids or more medication, but basically she's right where she's supposed to be. Her blood sugar levels were a little jumpy today, but I don't think they ended up giving her any insulin. They did have to give her some extra fluid last night and told us to expect her to be puffy and swollen today. She was a little more swollen in her face, but not anywhere near as bad as I was expecting. Other news: she's off of dopamine completely and her blood pressure is holding steady (yay!), there are rumors that she might get a little of my colostrum tomorrow (I didn't think they'd feed her any "real food" until after surgery, so that was very exciting to hear!), and if she keeps doing as well as she's done the past two days, we could potentially be looking at surgery mid-week next week. All very good news! Please continue to pray for good, boring, peaceful days like today and that she would keep being protected from all the complications that can come with being on ECMO.
I was discharged from the hospital today (Alleluia!) and we were able to spend a few hours together at Brenner's this afternoon. This was the first time all three of us had been together since the day she was born and we finally got our first family photos.
We spent time talking to her and reading to her and singing to her. The nurse made her that precious little white hairbow out of some gauze. We think it's adorable. She also got a "spa treatment" this morning, otherwise known as a good lotion rubdown. It's made her super-soft skin look much better because it was quite dry yesterday. Here are a few videos (I hope!... I haven't tried uploading video to the blog yet!):
We're doing our best to update the blog each evening, because you've all been so supportive and loving and we want to share our ups and downs of each day. But for updates in between, or if we skip a night or two, Robert has also started a Twitter feed for Clara. I'm not much of a Twitterer (is that what you call it?) myself, but maybe I'll figure it out and get on board. You can follow @PrayForClara.
We are thrilled to see Clara stabilizing and making progress and giving us hope for a bright, clear future. We're also humbled and excited and encouraged and amazed by how many people are praying for this tiny girl. God is being glorified through her little life already and we are so proud to be her parents. We'd rather her not have this pain or burden, but it's been a source of incredible joy to see how God is using her to touch people's hearts and renew spirits across this country and world.
Indeed, let the little children come to Him.